Ladybug House Newsletter

JULY 2015

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Dear Friends and Supporters,
 
This past June marks 2 years since I began turning my dream of Ladybug House into a reality. With the addition of several invaluable team members and nonstop communication with successful pediatric palliative care and hospice homes around the world, I am more confident than ever in the future of LBH. We are constantly reminded of how deprived our community (and country) is of an option for children and families to be together — in receiving treatment, respite and bonding time. We hear stories of exhausted parents camping in hospital parking lots and children craving a childhood. We are even getting inquiries from families asking how they can move into Ladybug House right now. My heart grows for these families each day.
 
Since our last newsletter, we have gained amazing support from people and businesses in the Seattle area. We have worked tirelessly to spread the vision and further the progress of raising funds and finding land to build on. Thank you to all who have named LBH as a beneficiary for their event, have "liked" our Facebook page, or even simply mentioned us in a conversation with friends. We would not be where we are today without your support!
 
Our call to action is to continue to share Ladybug House with those in our community. Please continue to reach out to your churches, coworkers, neighbors and friends. Our top priority is to spread awareness. With that, we know the funds and land will follow. This house will be built for the community by the community — which means we need all the help we can get. 
 
With love,

Suzanne Gwynn, Founder
Join us for this beautiful event! The Children’s Hospice of America Foundation (CHOAF) has chosen Ladybug House as one of their beneficiaries this year, along with Mary Bridge Children’s Hospital. Live butterfly release at 10:30am in honor and in memory of the children. We’d love for you to join the LBH Team, but feel free to create your own team if you prefer.

May 9, 2015

THE NIGHTINGALE 5K WALK/RUN

$1,300 raised + 100 new supporters
Presented by Seattle University College of Nursing. We were the beneficiaries of the "5k Nightingale Run", hosted by the Student Community Affairs Committee (SCAC) of Seattle University. What a wonderful day receiving support from the community.
April 25, 2015

SEATTLE DESIGN AWARDS

$15,000 raised + 400 new supporters
We were thrilled to have been chosen as the beneficiary of the Seattle Design Awards — honoring residential & commercial architectural and interior design. The black-tie event was held at the Ackerley Family Exhibit Gallery at the Pacific Science Center in Seattle and featured local Seattle celebrity presenters and entertainment. Presented by DList Magazine and Brazen Sotheby's International Reality and supported by Mercedes-Benz of Tacoma, Tectontic Audio Labs and Epic FlooringWatch video from the evening
April 21, 2015

SALTY'S TUESDAY TUNE-UP

$520 raised + 50 new supporters
Thank you to Salty's on Alki for choosing LBH as the beneficiary for their Tuesday Tune-up. Special thanks to piano-man Victor Janusz and Linh Van on behalf of Ben Bridge Jewelers of South Center. It was such a fun eventing!
March 28, 2015

SATURDAY FOR A CAUSE BOOTCAMP

$200 raised + 30 new supporters
Kutting Edge Fitness in Kirkland featured Ladybug House for their "Saturday for a Cause" event. It was a bootcamp style class and all proceeds went directly to LBH. 
March 26, 2015

LET'S BUILD A HOME:
A LADYBUG HOUSE FUNDRAISER

$11,000 raised + 200 new supporters
Our first fundraiser was a success!!! Special thanks to Osteria Rigoletto, DList Magaizine, Lydig Builders, Precept Wine, Soulumination and Green-Theory. It was such a memorable evening! View more photos here
 

HAVE AN IDEA FOR A FUNDRAISING EVENT? 
Email your ideas to info@ladybughouse.org. Whether it's for our next big gala or simply holding a dinner party at your home, 
creating an event is a great way to support LBH!
 

OUR DOLLARS SPENT...

  • Constant Contact (Contact Management Program)
  • Merchant Account (Financial Software)
  • QuickBooks (Bookkeeping Software)
  • Donor Snap (Donor Management Software)
  • Squarespace (Website Platform)
  • Adobe Creative Suite (Software for Designers)
  • Printing Services (Business Cards, Letterhead, Rackcards, Large Banners, Presentation Folders, etc)
  • Laptop (for LBH volunteer use)
  • Admin Support (temporary paid contract position based on month-to-month needs and available funds)

 

THE LACK OF PEDIATRIC PALLIATIVE CARE IS A GLOBAL ISSUE


According to the International Children's Palliative Care Network, there are over 21 million children worldwide living with life-limiting conditions.

Dr. Margaret Chan (Director General of the World Health Organization) made an unexpected but very welcome appearance at the side event on children's palliative care held at the 68th World Health Assembly. Hear what she had to say about the importance of palliative care for children.

 

THE NFL SPOTLIGHT ON PEDIATRIC HOSPICE NEEDS

 
Devon Still, of the Cincinnati Bengals, has been raising awareness for pediatric cancer, shining a light on our country's lack of well-rounded medical care for children and demonstrating the struggles in long-term hospital stays. He was forced into such awareness when his daughter, Leah, was diagnosed with Stage 4 neuroblastoma. The NFL has been praised for their support of the Still family and at the ESPY Awards last week, Devon and Leah received the Jimmy V award for Perseverance (see moving video here). With Devon's use of social media to tell Leah's story, he has gained thousands of followers and has even brought other children into the spotlight. One in particular, Julian, caught our attention as Devon was speaking out about the difficulties Julian's family was having in their effort to take their son out of the hospital for the end of his life. Devon's single instagram post (see here) gave Julian's family the attention they needed to fund Julian's way out of the hospital and into a home. And it unknowingly gave our cause more validity in mentioning the absurdity that pediatric hospice is nonexistent. We want to praise Devon for his use of his platform to raise awareness for pediatric cancer, and we want to ask all of you to consider ways to get the Ladybug House idea and mission to Devon himself.

IN THE UNITED STATES THERE ARE STILL ONLY TWO PALLIATIVE CARE HOMES FOR CHILDREN

 
George Mark Children’s House in San Leandro, CA and Ryan House in Phoenix, AZ. In the United Kingdom they are now at 53 houses. 

 

ADRIANNA'S JOURNEY...

Adrianna Marie Lizaola (September 5, 1997 – June 3, 2012)

My daughter Adrianna felt lonely and disconnected. She carried guilt and felt like an unfair burden — she was tired. Our family lived under separate roofs for approximately two years. Adrianna could not see an end to this and so she pleaded to return to California where she was transferred to City of Hope. At that point Adrianna’s quality of life deteriorated. This was in most part due to emotional, social and environmental issues. Our family still remained separated, unable to sleep under one roof. Adrianna felt torn and sensed that she was causing all of us difficulty. She was tired of the emotional and relational tolls. At the age of 15, Adrianna’s strong faith in Jesus caused her to make a difficult decision. She believed that being completely healed in heaven and living in Jesus presence far outweighed remaining a burden here on earth. Her options were so limited: remain in the hospital to continue treatment, or receive hospice with no further treatment. Adrianna yearned to all be together as a family. She no longer wanted to feel like she was tearing her family apart. I believe that if we had any other option she would have chosen to remain in the fight. The existence of Ladybug House may have changed Adrianna’s story. I am not sure how words on a page may influence you or your decision making, but Adrianna and other children like her aren’t just words on a page. She mattered. They all matter. The death of a child is real; the experience changes you forever. My daughter isn’t just a name and a story. Adrianna was a person; embodiments of faith, worship, joy, laughter, creativity, and dance. She is… all the people that prayed for her, that love her, that knew her; she lives on in so many of those things. She does not live on merely as a memory no longer affecting the present.  Instead, Adrianna lives on as a ripple throughout our present lives and time — an echo in eternity.   — Written by Adrianna's mom, Scarlet Estrada       
 
Click here to see the note Adrianna left on her hospital room door
WE'D LOVE TO SHARE YOUR STORY!
Email your story to info@ladybughouse.org

 

MEET LBH TEAM MEMBERS...

Carly Andrews graduated from Seattle Pacific University with a degree in Sociology. She has dedicated a large portion of her recent years to charity organizations such as the Alzheimer’s Association, American Cancer Society’s Relay For Life, ROOTS Young Adult Homeless Shelter and Young Life Capernaum. She has been using her wide range of skills and experiences to take the administration, organizational and fundraising aspects of Ladybug House to the next level.
Molly Leonard is a freelance graphic designer with 10+ years of professional experience — anything from designing logos to hand screen printing posters. Clients have included Seattle Symphony, Brooks Running, Starbucks, Krispy Kreme and countless more. She graduated from East Carolina University in Greenville, NC with a BFA in Graphic Design. As brand leader for Ladybug House, her main duty is to ensure brand consistency throughout all marketing materials. Inspired by the idea of LBH, she also became a hospice volunteer for Evergreen Health about a year ago. She has the unique ability to connect with people on a very special level. 
WE NEED VOLUNTEERS!
We need a bookkeeper who knows QuickBooks that would be about to give our finance team 4-6 hours of training. We need a volunteer to develop a social media strategy and a volunteer to create a strategic plan for PR and Marketing. We would love you to join our team! Fill out our Volunteer Form then email it to info@ladybughouse.org.
The Ladybug House team wants to sincerely thank all involved for their time, ideas and encouragement. No matter how great or small, every action brings us closer to our goal.

SPECIAL THANKS...

Big shout out to Cambia Grove for providing an exciting community workspace. The connections and networking we are benefiting from this has been amazing. Check them out here
Thank you Anna Hollister for representing LBH at the Gates Foundation's Teen Action Fair in March! Anna, our first teen Ambassador, is an 8th grader from Our Sister of Guadalupe in West Seattle. Not only did she help spread awareness, she also baked cookies for the big day! We look forward to other teens advocating for the need of pediatric palliative care in the future.
Thank you Sandra Miller for using your 50th birthday party as a platform and raising $1,075 for LBH! Instead of gifts you asked your friends to write checks made payable to us. Also big thank you Lynn Christian for hosting a special gathering with your women’s group to help raise $725 for LBH. We are honored by your selflessness.
Copyright 2015 Ladybug House, All rights reserved.

Our mailing address is:
P.O. Box 80801  |  620 S Orcas Street  |  Seattle, WA 98108

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